I was born with a bilateral cleft lip and palate. My parents were very shocked and a little afraid when I was born; they didn’t know if I would ever lead a normal life with my condition.
When I was two months old, we visited Universitas Hospital. The surgeons, speech therapist, genetic specialists and a clinical psychologist explained to my parents what surgery I needed and how to feed me correctly. This helped my parents a lot!
I had my first operation in February 2017 to repair my cleft lip, and afterwards everyone thought I looked beautiful! But I still had a large cleft in my palate, which caused milk to come out of my nose.
Three months later I came back to the hospital for my next surgery. The whole team was there once again, and helped my family through my operation and post-operative care.
Surgeons managed to close up the cleft in my palate, but there is still a small opening in my jawbone that allows milk through my nose.
The doctors explained that I will need another operation when I am six years old to replace part of the alveolar bone. Then I will be able to eat and drink with no problem at all!